June 15, 2024

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Spinal Muscular Atrophy: Indians who need $2.1m drug to fight a rare disease

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Affan, seven, and Erhan, five, have Spinal Muscular Atrophy (SMA) – a rare genetic disorder that causes muscle deterioration and affects breathing. Physiotherapy appointments alone cost the family 40,000 rupees ($480; £395) a month, and their sons need constant care as they cannot sit, stand or walk independently.

2023-11-06 00:44:10

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